The State of Me: June 2018

This is my new friend Henry.

Another quick one because: a) the election and b) medication.

So bullet points:

  • Latest New Dog update suggests that IF they find one for me, next class starts in September so I should hear something next month. I’m not banking on anything. 2018 is much more likely.
  • It’s bipolar redux month: I’ve just gone back on quetiapine. My mood’s been plummeting and my anxiety’s sky-rocketed. Some of it was personal but getting a rent notice three months early and paperwork from the DWP a year early (to add insult, on a Saturday) did not help.
  • I’m taking enough that I feel stoned until around 2:30pm each day. Coffee helps but only a little. Oh and I slept for 14 hours last night, right through until mid-afternoon.
  • And I missed most of the election, which turns out to be a good thing. Urgh.
  • I’ve moved into Nero’s permanently now and am accruing a lot of free coffees by being savvy (you get a bonus stamp for bringing your own mug which allows me to spend a lot less on coffee, as well as making sure it doesn’t cool).
  • When not in Nero’s, I seem to be in the Lamb. It’s a little pub with a courtyard in spitting distance of my bus stop and they even have their own cat: Henry, Lover of Dreamies. We’ve bonded and it’s not in the least bit creepy that I now carry Dreamies in my bag.
  • Yesterday was the first anniversary of the Great Name Change. I bought myself a throw in celebration.
  • Speaking of the Great Name Change, I’m still encountering issues. Like the DWP deciding to ignore the loss of a middle name in my paperwork. It’s taken me a year to notice as they seldom any middle name unless it’s renewal paperwork and they don’t usually send me large print. I’m hoping this has now been fixed. The Deed Poll was pretty clear about my old name and my new one.
  • Wonder Woman was amazing, BTW. I’ve seen it twice and, oh, the arse-kickery.
  • American Gods is, similarly, one of the few TV shows to really get my attention.
  • People have started calling me Ash in earnest now. I like it. I’ve never had a contraction of a name I’ve loved before.
  • The cats love me; D is still a bitey little shit.
  • I’m still writing but my process has slowed. I broke my Amazon account so don’t really want to go anywhere near KDP for a while, even though I spent a week dealing with Amazon and the angelic CSR who eventually helped me fix everything. Triggers are a bitch.
  • I’m writing a proof of concept story called “Proof of Concept”. I’m hoping it’ll be ready for crit next week. That aside, anything more complicated is on hold. Though I do have an idea for a fantasy series connected to this particular short.
  • It’s sorta, kinda summer. Yay!
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The State of Me: Anxiety Issues

It’s hard to say I’m anxious when this lovely—but bitey—little monster is curled up on my lap every morning. But I am and it’s crippling.

I have medication—personally reserved for the biggest shitstorms or when I’m triggered—to take but most of the time it’s a constant stream of noise in the background which breaks my brain.

To give you an idea of just this morning:

  • It’s sunny, should I go into the city?
  • I don’t wanna go into the city but, equally, I need to leave the house to keep my sanity intact. Will a walk to the garage sort that?
  • My friend is calling, do I make myself available even though I hate the city/going in late on a Saturday.
  • Will they take this personally? I just don’t want to go in.
  • Do I get up or stay in bed?
  • Do I nip to the garage and get a (free!) coffee?
  • Do I ‘stay local’?
  • I don’t need to go to the supermarket, do I? Oh, gods please no.
  • I need to do at least two loads of washing, including stripping my bed (which I hate).
  • Do I want that coffee? I have no chocolate in the house …
  • Fuck, I just looked at my credit card. I’m a failure.
  • Is D going to hate me if I move and disturb him?

Today wasn’t even a bad morning. It was just normal. Some of this is my actual anxiety, the rest my PTSD and autism. It’s not a nice mix, as mental illness cocktails go.

Fortunately, I was on the phone with one of my BBFs who quickly reminded me most of my credit card (well 1/3) was the shopping I needed from Sainsbury’s. Because if I don’t feed the cats, they will eat me, and I have MySupermarket set up to email me whenever their chow of choice is on offer. Plus I needed a bulk buy of other household stuff like bog roll, kitchen towel, bleach and heavy things I can’t carry.

I get stuck in a recrimination loop most days. Usually, due to being starved as a child, it’s food related and panicking about not having a specific item in the house. Today it was chocolate. Because female and PMS is near constant for me. The point re the food (plus any obsession) thing is that I’m literally unable to function until I’m reassured I have whatever it is in the house, the good thing is the garage has a much bigger selection now than it did pre-makeover.

Another example:

Last night I couldn’t find my emergency roller tip for my cane. I have a sneaking suspicion I bought three, changed two out and had the last one lurking somewhere. Except my memory’s so damaged I can’t remember half of the last two years from the medication. I had a flash of the tip in its little bag but it was in none of the places I normally put these things. I only started thinking about it because I’m helping New Friend who needs a new cane and wanted to give her one of my older, larger roller balls as a stopgap until we can get her a long cane she’ll actually use.

It doesn’t matter, not really. I have a spare cane but I need to order new balls, I just can’t afford to do it right now (they’re nearly £6 each from the RNIB). I was trying to work out, when we get New Friend a couple of special-order long canes from Canada, if it would be cheaper to add in some balls with the order for me and her. Sadly the exchange rate is in US$ not CAN which sucks so not really. I could get them locally but Sensory Support is a pain to visit and last time I was told to just order them from the RNIB instead of getting them for free. Double sigh.

Oh, and I’m still refusing to patronise NNAB, which was the last place I got the balls, because they cancelled archery on us. I’ll visit if I have to but I really don’t want to. Plus there’s no guarantee their equipment centre will a) have them and b) give them to me for free.

Stuff used to be free. It was a heck of a lot easier. I suppose at least I know where to get stuff. That’s not disabled entitlement talking, BTW, it’s a literal case of all mobility aids used to be free. You’d ring a number, give your registration details, and whatever you needed would be sent out by second class post. It was awesome. Except for that one time where they put two folded canes through my letter box and said canes unfolded.

My hallway is only about a metre square between door and steps. If that. That was a fucking nightmare.

That was a fucking nightmare.

I have what I call anxiety twitches. They’re random ripples that just set me off. Yesterday it was because I stayed home, because I lounged in bed. I have issues lounging because, in my head (not the best place, obviously), lounging means laziness which is the stereotype of the benefit scrounger. Again this bounces directly back to my disabled imposter syndrome and the non-disabled concept of what how a disabled person should behave. This is a lot harder for me and New Friend because both of us have more sight than most people put together. But we’re both still blind. Technically and literally.

And I am missing not having a dog which isn’t helped by my Husky fixation or BFF’s love of German Shepherds, though I do appreciate having daily lab/retrievers posted on my Facebook page. The lack of my own guide dog, however, it’s getting really bad now. I cried last night because I was on the phone to BFF and could hear Gismo in the background, chasing dream bunnies. He doesn’t yip, more grumble, but that noise, it still reminded me of Uni. Who used to gallop across the carpet and make tiny yip-barks of joy.

I’m still stuck on a waiting list and it’s been nearly eight months (unofficially). I know I need to wait, that compromising will just bite me in the arse for the next decade of my life. But I need a dog, Bramble hugs only go so far and I want my own. I have my friends and their dogs, but I’m not as fast as them, I’m constantly having to focus on where I’m stepping which means I feel slow which my anxiety translates to ‘I’m overweight ergo lazy’ as opposed to ‘I can’t see and have to slow down’. Friends are awesome but they have dogs so don’t have to worry about that. I also have to watch my cane in case I clip one of their dogs’ back legs.

I’ve always had anxiety, except it never bothered me because I was either busy or I could step around it: I had to go to London, because of work. Work was my shield. I could ring people because it was work-related because that was how stuff was done. Now I have a phone phobia and just seeing unknown numbers triggers me. I can make phone calls but it has to either be for someone else and in a capacity where my flowchat of answers is active (like ringing the DWP but always, in that context, for someone else) or it has to be a last ditch/no other option thing.

Oddly I’m perfectly fine ringing my power company …

Weird.

I prefer email/twitter/IMing because it gives me a minute to think before I reply. Ask me on the phone and I’ll capitulate and instantly guilt will set in because I’ve not had time to plan something out. I like planning. It keeps me sane. But, at the same time, my default is that while I have a plan, I don’t take precedence. All my friends know that if I’m not in the city, they need to factor in an hour for me to get to them. That alone stresses me because, in my head, I’m supposed to be psychically aware of everyone else’s plans, even though they’ve not told me. I’m supposed to spend my days sitting in cafes waiting for them to ask if I’m in for coffee.

And if I’m not, I feel guilty, because of my lack of foresight.

A couple of days last week I found myself with time and no one else in it. So I took myself to a boardgame night. I went in late, had coffee, did some writing, and then had fun. I got one of the last buses back, timing it with perfect precision. I was so proud of myself (especially as I’m never usually out past four pm). But then, a few days before that, I went to the movies on a Bank Holiday and, knowing the buses were on Sunday service, left the movie thirty minutes early so I wouldn’t have to wander Riverside or spend money in a bar while I waited for the next bus. Missing buses, even when I know there’s another one in x minutes, really stresses me out.

But then, a few days before that, I went to the movies on a Bank Holiday and, knowing the buses were on Sunday service, left the movie thirty minutes early so I wouldn’t have to wander Riverside or spend money in a bar while I waited for the next bus. Missing buses, even when I know there’s another one in x minutes, really stresses me out.

The point is, my anxiety is logical but still stupid.

Also, it doesn’t come with an off switch, not unless I take myself off the rails. Most of the time, unless it’s a calmly prepared but last minute thing I don’t have time to panic about, I just can’t. Not unless I’m very medicated and a Valium addiction is just not on the cards right now. I try to rationalise it, taking myself out of the picture or asking ‘What would Mhairi do?’ and then tone the answer down just a little. Sometimes it works but the contriction, it’s never going to leave me.

It is me.

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