The State of Me: Prepping for the Worst

Quetiapine and I have an interesting relationship. Technically I’m good with quetiapine, it’s when you add in diazepam and Ambien when things get fun.

This is said with as much sarcasm as I can muster. Seriously.

The problem is I have brain damage, specifically periventricular leukomalacia (PVL). This was basically a side-effect of oxygen toxicity from being premature (and it’s why I have retinopathy of prematurity as well). Now in a normal brain, you might stand a chance but as mine has severe rewiring issues caused by hypoxia, the ASD and bipolar angles as well. All this is on top of long-term benzodiazepine use. I’m screwed.

I’m screwed.

Last time I got so scatty I literally couldn’t do anything as I’d forget it ten minutes later. This time I’m aware and trying to prep for the worst. This means I’m on low-dose diazepam (for anxiety) and avoiding taking anything to help me sleep. This isn’t an issue right now as the 300mg of quetiapine is basically knocking me senseless. It lasts about a week but this has been extended because I had a party (and thus skipped a couple of doses) due to alcohol consumption and a general desire to be, you know, conscious.

I’ve already noticed a lapse in my cognitive functions; I put things down and forget them. I’m a natural multi-tasker but this has meant not even going near the kitchen, let alone leaving anything on a stove. If I do cook, I prefer the boiled egg method where you put potatoes or eggs in a pot of boiling water/slow cooker and then just let them cook. No gas involved. I forgot my potatoes for thirty minutes tonight. This is why I eat out.

In some ways, I’m in a better place to do this than I was. I write down stuff religiously as well as keeping a diary of where I was/who I was with and what I’ve done during the day. I also spent the afternoon documenting the contents of my fridge/freezer/cupboards to help me manage my shopping (lists and visits to supermarkets) more effectively. Fridgely lets me take photos of the stuff I have, note expiry dates (milk is a big issue for me, ditto eggs) and also compile a shopping list when things get low. Even better, when I restock and scan the barcode, it remembers the item so within a few weeks I should have this down pat.

But I’ve noticed my concentration is fleeting. I’m leaving tasks half-finished, unable to concentrate on anything more complicated than Futurama. I tried a couple of hours of ARIA the Animation (one of my favourite chill out anime series) but couldn’t focus on translating the dialogue on the fly and write at the same time. Thing is, I can’t sit and focus and watch something either. I need to do more than one thing because it’s how I function. I want to world build for a new fantasy series but I’m finding the ideas evaporating like smoke. Even this blog post took twice as long to write because of subtle distractions.

I want to world build for a new fantasy series but I’m finding the ideas evaporating like smoke. Even this blog post took twice as long to write because of subtle distractions. My Midori helps in a lot of ways, not only am I tracking spending and have a diary plus braindump journal in there, the very act of writing helps hammer things home in my brain. Typing can’t hold a candle to this.

That and awesome friends who were there the last time this happened and have seen me at my flakiest.

But it’s tiring. The memory issues make me anxious about safety. Cooking is right out. At the same time I really want a drink and, as I’ve been spending a lot of time in the courtyard of a very nice inn, I’m keenly aware everyone else is drinking and I … can’t. I got my story into crit this week but that’s about it and I’m frustrated that words just aren’t coming. The pressure leads to anxiety which leads to stress which just makes things worse.

At the same time, one thing I do want to do is start some kind of gratitude journal. I picked up an A5 Hobonichi Cousin Avec (which runs July to December) as I wanted to try one out as well as the Tomoegawa paper. I’ll prob pick up an A6 version in September (along with the cover etc) in order to document the coming year. I just can’t do anything until I hear about my PIP and that, too, is stressing me out. But I have started doing things and one of the bits I’ve enjoyed about having a paper diary is being able to stash tickets or postcards in it, things which were tangible proof of events.

This week, for example, I went to a book signing by M.R. Carey at my local Waterstones. I love The Girl With All the Gifts, especially the movie version, and it was so nice to get out after hours, as it were, and not have to worry about getting home. The bus stop is 3 mins from where they were having the talk and my favourite driver, Tony, tends to be doing that shift. I also had a bottle of wine which led to a fun 45 minutes of him remaking on my bladder. Git. The point is, I feel able to do things because I want to. I was going to go home at one point and I’m so glad I didn’t.

I’m not normally an evening person but, right now, that’s when I’m the most conscious.

I’m having to slow down a lot but I’m still here. I have to remind myself to do things, to take my medication with regularity but it’s baby steps until I figure out how my brain wants to play, nicely or not.

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